FDSWF serves individuals with disabilities and/or special health care needs, their families, and professionals who support them.
We want to live in a world where everyone is:
- valued and treated with respect, fairness and equality
- included in their communities
- given opportunities to dream, achieve success and change the world.
We believe that the FRIENDS SELF-ADVOCATES CLUB (F.S.C.) provides opportunities to:
- share new and diverse ideas
- inspire and strengthen our individual capacity
- form a strong team to change the world together
Ages 15 & Up
FRIENDS SELF-ADVOCATES CLUB is an awesome group of friends. We provide a safe, supervised way for young adults with Down syndrome to meet and enjoy each other’s company while participating in a range of activities. The purpose of this group is to provide socialization within the community and opportunities for friendships to develop. Join us to make friends, develop confidence and self-esteem, practice social skills and, most of all, have fun! F.S.C. meets monthly in Brandon & Clearwater for a fun dance. See website calendar and Facebook events page for more details.
HEALTH CARE GUIDELINES
The Down Syndrome Health Care Guidelines are based on our present level of knowledge and should be modified as new information becomes available. Modern primary health care includes educational and developmental concerns within its domain, and therefore we have included information and recommendations specific to these needs of individuals with Down syndrome.
You can count on FDSWF to be supportive, informative and there for your family. As we grow as a community, we are striving to provide timely information and support in transition planning for our adults with Down syndrome.
Link to the adult services on these pages
Agency for Persons with Disabilities
http://www.floridahealth.gov/programs-and-services/people-with-disabilities/
SEXUALITY
Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality – A healthy, proactive approach to educating children with Down syndrome about their bodies and sexuality is a book that is available through our resource lending library.
Sexuality Across the Lifespan – An instructional guide for parents and caregivers of individuals with developmental disabilities.
Sexuality & Down Syndrome – information on the NDSS website
DOWN SYNROME AND ALZHEIMERS DISEASE
The idea that Down syndrome and Alzheimer’s Disease are connected is very concerning to families. This link will take you to an archived webinar called Dementia Among Adults with Down Syndrome: Individual Differences in Risk and Progression. It was originally presented on January 20, 2010 by the Association of University Centers on Disabilities.
Other health information can be found on the national organization websites:
National Down Syndrome Society
National Down Syndrome Congress
Mental Wellness in Adults with Down Syndrome – A Guide to Emotional and Behavioral Strengths and Challenges
Bienestar mental en los adultos con síndrome de Down – Una guía para comprender y evaluar sus cualidades y problemas emocionales y conductuales
Down Syndrome & Alzheimer's Dementia Capable Support
Jadene Ransdell, Family Advocate (727)543-4174
Down syndrome & Alzheimer's Dementia Capable Support - A Facebook support group for families, caregivers and those who support individuals with Down syndrome and Alzheimer's